After reading what others have written, I realize how fortunate I am. Thank you for being so honest. My scalp and eyebrows are a constant bother, but that's about it. I wish I didn't have to deal with it and to have to keep trying to find something that makes the itch stop and the flaking disappear. I wish I wasn't controlled by the shame I associate with SD. I am amazed that my family has never asked me about it. It's pretty hard not to see when it's flaring up on my hairline and brows. I don't think any of them have it. I hope they feel they can mention it if they do.

It’s depressing before I had nice hair and now I’m seeing a bald spot. It’s totally taking a toll on me trying this and that from shampooing to applying cream on my scalp even soap’s that kill fungus. Im a mess and so tired . I’m drained every day. My dermatologist sent me to UC Irvine and I don’t have an appointment with them till October. That’s my next step.

I forgot to say this earlier, when I commented, but it’s kind of like when you were a kid, and you put glue on your hand, and then wait for it dries to peel it off… it’s kind of like that only it itches also.

Drying out of my skin all over my body causing cracking, layers of rough scaly skin, cracking, prickly and burning. Loss of most of my hair, miserable, depressing and scary. It's like my skin which I never had a blemish has been taken over by something that feels foreign.

All of my social media posts I can see myself lose my hair. It’s now the before or after of that horrific 9 month experience. My hair is growing back but I went from 18” thick waves to well not a Bob yet. But all of my skin is healed and I have layered curls that everyone just loves. Not me. But I’m so thankful it’s working miracles and my life has gone back to normal besides not recognizing myself in a mirror. Oh well. I’ll take it over that herendous physical pain.